Category Archives: ASD

While We Wait…

There are times in life when we have a dream, vision or even a promise that we are waiting for God to fulfill in our lives. However as we wait for the manifestation we may not always wait with a faith-filled expectation. Our sense of urgency doesn’t always correlate to God’s timing or His deliverance.

Our determination to stay in faith often wanes with the time required for our loved ones to reach their full bloom. Progress isn’t always made when we expect it. We may experience setbacks and false starts. Time spent waiting, disappointments, and unfair circumstances may move us to manipulate situations as our trust breaks.

Or, we can become bitter and angry when we are forced to face the unexpected.

God is faithful in the waiting period. In times of complete silence or when you are at your lowest point is often when God is working on your behalf!  DSC_0376 (2)

The book of Genesis tells the story of Joseph and how he was sold into slavery by his brothers, lied upon, tossed into prison and spent years waiting for the fulfillment of his dream.  Joseph was faithful during his period of waiting. He knew that God was with him. Joseph worked faithfully in his adversity serving others. Joseph was faithful to God through repeated temptation. He didn’t become bitter. Joseph was eventually delivered from a pit into the palace!

Sometimes God allows us to wait through “low” times to prepare us for what is ahead. Waiting develops character and tenacity. Some blessings we ask for we aren’t able to correctly manage…yet. We must not lose faith that God does hear us.

Joseph endured his period of waiting with the right attitude. I can’t say I’ve always done the same. However, I am learning to trust God and His timing more than ever.

God can answer my prayers more efficiently than the meager results of my own misplaced efforts. My prayers aren’t just about me or my kids. We are only pieces in an infinite puzzle that only God can put together. I can’t count how many times Lan’s teachers have said they have learned so much from him.

I don’t always understand what is going on. But I do trust and know that despite my frustrations God provides the blessing when it is needed most.  

I have prayed certain things about my children’s growth and development not knowing what would happen or what to expect. Things haven’t always looked good. Yet, faithfully God and only God turned situations completely around! 

DSC_0379 (2)What God has done for me He can surely do for you. If you trust Him…and are willing to wait.  

“Wait on the LORD; Be of good courage, And He shall strengthen your heart; Wait, I say, on the Lord,” Psalms 27:14 NKJV

Progress Report!

My kids have been in school about six weeks now so their first “progress reports” were issued last week. This is the first time Lan has ever started the school year so well. His Cs and Bs have been replaced with As and Bs!  I think even he was surprised by how well he’s done.

Now many kids on the spectrum make straight As with little effort. Their “gifts” allow them to be scholastic geniuses. Yet there are other kids like mine who struggle in school. Every good grade is fought for. There is no real “down time” from school. Their work never seems to end.

If I didn’t work full-time my kid would probably have straight As. This is what I thought through the years. In fact, I was angry that I could not “be there” for Lan when I thought he needed me most.

Yet, God had other plans and I do believe I’m seeing the fruit of Lan’s labor.

Since I haven’t been readily available, Lan has learned how to get by without me.  He has to study on his own, learn to organize himself (still working on that one!) and keep track of his assignments. He fights for every grade and works harder than most to achieve satisfactory results.

He has learned to work independently.

We’ve come a long way from those elementary years of playing “catch up” and even the middle school years of “keep up.” There were tears and frustration both his and mine. But they now seem like distant memories finally fading away.

I couldn’t imagine this even as I prayed for it many years ago. This small ray of academic achievement once appeared to be impossible. But with God all things are possible.

My guilty tears were all for naught. I’m very proud of the progress Lan is making without me. God knew I couldn’t always “be there” if Lan was to ever become independent.

At Friday’s football game Lan spent time on the other side of the stadium with his old friends from middle school. It was a far cry from this time last year. I wasn’t worried or preoccupied that I couldn’t see him. He hung out with his friends just like any other kid. I sat in the stands and relaxed like any other parent.

We’ve still got a ways to go but we are both maturing and stretching our wings a bit. Just like a butterfly that has to work its way out of the cocoon, the struggle comes before the flight. Years ago, when I thought my circumstances were terrible, God was in control the entire time. I can see it now.

I’m learning to get out of the way and allow God to work out situations as He would have them.

I guess Lan and I have both progressed this second year of high school. And for that I am ever grateful.

 

***I’ll be “out of the office” until next week. I will respond to comments when I return 🙂

 

Labor Less!

“Come to Me all you who labor and are heavy laden, and I will give you rest. Take My yoke upon you and learn from Me, for I am gentle and lowly in heart, and you will find rest for your souls. For my yoke is easy and My burden light.” Matthew 11:28-30 NKJV

In my struggle to relinquish my control freak tendencies, I rely on this scripture time and time again. I learned that I don’t have to conquer my corner of the world in my power.

There was a time in my life where I was working very hard to give my children all my attention. I worked long hours. Then on my days off would I try to cram days of lessons in with Lan, never wanting him to fall behind his peers.

These efforts only brought forth fatigue on my part and frustration on his. When I was at a point when I could no longer do this, a funny thing happened. Lan’s grades improved.

I had no choice but to trust God. I didn’t have the time to prep Lan for those standardized tests. All those practice books went unused. I was at the mercy of his teachers to give him everything he would need.

I was tired. My job was wearing me out. I was trying to balance the needs of two kids who are polar opposites. I was attempting to be a real life
“wonder woman” meeting unrealistic expectations I had imposed on myself.

Finally at this point of burn out, I stopped struggling so much and gave it a rest. I prayed more and worked less.  I found the more I trusted God, the more He did for me.

When I finally stopped running myself ragged and was still, I could hear Him.

I found comfort in the fact that I really don’t have to know it all.

When I don’t have an answer, I now trust God first. Whatever I need will find me.

It wasn’t the quickest transformation, but I don’t want to revert back to where I was.

Casting my cares has been liberating. I am sometimes amused, wondering just how God is going to work certain things out.

So, If you are tired, burned out, or at a loss, don’t wait years like I did.  You will accomplish more when you trust God and choose to labor less!

Labor Less!

“Come to Me all you who labor and are heavy laden, and I will give you rest. Take My yoke upon you and learn from Me, for I am gentle and lowly in heart, and you will find rest for your souls. For my yoke is easy and My burden light.” Matthew 11:28-30 NKJV

In my struggle to relinquish my control freak tendencies, I rely on this scripture time and time again. I learned that I don’t have to conquer my corner of the world in my power.

There was a time in my life where I was working very hard to give my children all my attention. I worked long hours. Then on my days off would I try to cram days of lessons in with Lan, never wanting him to fall behind his peers.

These efforts only brought forth fatigue on my part and frustration on his. When I was at a point when I could no longer do this, a funny thing happened. Lan’s grades improved.

I had no choice but to trust God. I didn’t have the time to prep Lan for those standardized tests. All those practice books went unused. I was at the mercy of his teachers to give him everything he would need.

I was tired. My job was wearing me out. I was trying to balance the needs of two kids who are polar opposites. I was attempting to be a real life
“wonder woman” meeting unrealistic expectations I had imposed on myself.

Finally at this point of burn out, I stopped stuggling so much and gave it a rest. I prayed more and worked less.  I found the more I trusted God, the more He did for me.

When I finally stopped running myself ragged and was still, I could hear Him.

I found comfort in the fact that I really don’t have to know it all.

When I don’t have an answer, I now trust God first. Whatever I need will find me.

It wasn’t the quickest transformation, but I don’t want to revert back to where I was.

Casting my cares has been liberating. I am sometimes amused, wondering just how God is going to work certain things out.

So, If you are tired, burned out, or at a loss, don’t wait years like I did.  You will accomplish more when you trust God and choose to labor less!

Let the Music Play!

As parents and caregivers of kids on the spectrum or any special need, we are often motivated, guided, or pushed toward focusing on those target skills our kids are lacking. We are often caught up in therapies, tutoring or trying to catch up to whatever norm “they” deem deficient in our children.

How different would our kid’s lives be if we could instead focus on their positives instead of always trying to compensate for those things regarded as negatives?

My youngest has generally struggled with school. He works hard. Really, really hard just to pass his classes which is especially frustrating as his older brother excels in school. Lan was very disappointed when his brother and childhood friends were off to the Magnet school and he simply could not join them.

However, Lan does have a talent for music in which his brother has been unable to best him. Both boys play piano along with other instruments. Yet, Lan has been gifted with “perfect pitch” something most musicians would love to have. Unlike other things that are difficult for him, anything musical comes much easier with a joy that surprisingly spreads to the people around him.

I started Lan in piano lessons as my version of occupational therapy. When he began writing in preschool, his fingers weren’t quite as strong as they should be. Piano lessons strengthened fingers that struggled to hold a pencil. Best of all, Lan enjoyed the lessons. Now, these same fingers draw intricate cartoon characters with very little effort. By focusing on what he could do, the door opened for another talent to emerge as well!DSC_7293 (2)

The more I hear incredible stories about so many kids on the spectrum and their thoughts, gifts and talents; the more I believe that everyone has something to give. Some people bring positive qualities out in others. Then there are others also on the spectrum blessed with things us “neurotypicals” can only dream of, skills or talents that often amaze and leave others speechless.

If only the time we spend during the school year striving to meet “goals” designated by other people, (I’m still trying to figure out who they are) could be used to cultivate those gems that lie dormant within, I wonder how many “atypicals” could more positively impact our world?

There are people whose gifts go unearthed because as a society we don’t prioritize searching those talents out. Instead we hammer people to conform.

I’ve seen a few miracles in the health care realm. I’m optimistic I’ll see many more with God’s grace and His power. The advances in science and technology lead me to believe there is so much more yet unseen. But we have to look for it!

So until “they” decide to focus on the person and not on an arbitrary set of goals and “normal” is designated for the individual instead of the masses, I will continue to encourage kids to search out and nurture the talents God gave them.  DSC_1350 (2)

If we don’t make searching out God’s gifts within our kids a priority, if we don’t build them up so they can unearth the beauty within and give them a sense of pride in what they can do instead of continually emphasizing what they can’t…who will?

As for me and my crew, we will continue to let the music play.

“The LORD [is] my strength and my shield; My heart trusted in Him, and I am helped; Therefore my heart greatly rejoices, And with my song I will praise Him.” Psalms 28:7 NKJV 

  

 

Rite of Passage

Two weeks ago, I sent my youngest child off for his first day of high school. I’d done this very same thing, just last year, but this time was different. Unlike my brainiac first-born, my younger child has an Autism diagnosis. Asperger’s to be exact. Lan successfully navigated and “graduated” middle school managing to even pass those aggravating standardized tests necessary to progress. But this year was different. This would be the first transition to a new school where he would have to go it alone.

Unlike the transition to middle school, Lan was entering a school out of our district. Consequently, the comfort of familiar friends was lacking. For the first time, his big brother would not be in close proximity to watch out for him and rely on. Lan was apprehensive. My husband and I were guarded. I often wondered years before just what would we do when it came time for him to enter high school?

God has proven time and time again that He has my solutions before I ever anticipate my problems. I could in no way expect that Lan’s former elementary school principal would be appointed principal to his future high school. There was no reason to ever suspect Lan would ever attend this school as it was well out of our district. I also couldn’t predict that his former IEP teacher (that’s special education for those of you out of the loop) who taught him for years in elementary school would become a counselor at that same high school.

It took making a request to the school board and having it granted that placed Lan in a position where people he knew would have his best interests at heart.  Upon notification of the county’s approval, I didn’t have to ask that his former teacher be appointed as his counselor. The principal took it upon herself to do so on my child’s behalf. The familiar connections made years ago proved vital even before the school year began. With their assistance, schedules were modified and class requests accommodated. I am confident that what was painless with them would have been a headache elsewhere. I am so grateful for their helping hands that guided us each step of the way.

The first day of school was overwhelming for Lan. My husband and I probably didn’t fare much better. Lan’s first comments when I asked him about his day was that the school was “too big and loud and the students were huge.” I must admit several upperclassmen looked to be about the size of professional athletes. He looked so small in comparison. I assured him the next day would be better and prayed that it would be so. Thankfully, it was.

The addition of band class, a familiar face at lunch, and learning to navigate the vast hallways settled the nervous stomach. It did wonders for my husband and me as well! Even without the comfort of our neighborhood kids to watch over him, Lan ventured out into the vast hallways greatly annoyed that his overprotective parents continued to worry and hover.  Yet, by the end of the week, he was eager to head off to school, vocal about his assignments and looking forward to the first football game.

God answered a prayer I’d uttered years ago out of frustration. I distinctively recall sitting in my car contemplating school choices for him with tears in my eyes, frustrated and at a loss for answers. All of the schools I’d considered previously were at least an hour’s ride away from home and well beyond the capabilities of my budget! Thankfully, I wasn’t required to come up with an answer.

I didn’t have to figure, maneuver or plot out the points to the most desirable outcome. I didn’t have to go before the school board and plead my case.  With one letter, I was spared from enduring the inconvenience of juggling two boys at two different schools and the conflicting schedules sure to ensue. My oldest was already attending the magnet school located on the same campus. Our county has a provision that if one child is already attending a campus, any sibling can follow. Cam decided to apply for the magnet school at the very last minute. It wasn’t anything we had planned for. I’d been trying to convince him for two years the magnet school was where he belonged. Wouldn’t you know it would take a girl, not his mother, to convince him that is was a good idea! God used the opportunity given to one son to open a door for the other.

God put the right people in the right place at the perfect time. Twelve years after a “pervasive developmental disorder” diagnosis and five years after the Asperger’s label, Lan moves along aware but never thwarted by his condition. His attitude has never faltered and aside  from the regular teenage moaning and groaning, he continues to take everything, challenges included, in stride. If only we, as parents, had the same confidence.

I thank God for answering my prayer, even years before I would ever realize what He had done. God has delivered on more than one occasion. I shouldn’t still be in awe but His grace always overwhelms me. Not every day on this journey has been a good one. We’ve had our fair share of trials and meltdowns, but still we press on.

If I’ve learned anything in this back to school process, it is to once again trust God. And worry less. Even as the control fanatic that I am, I could never have orchestrated things so perfectly if given the chance.

I grudgingly accept that autism dictates some of my decisions. I am grateful, though, that it does not determine our outcomes.

God’s grace covers! Autism has yet to define my child, at least, through his eyes. The first week of high school was met head-on and we survived. God watches over His children. God continues to watch over me.